Wales Council of the Blind

Dystonia Society

Description: The Society was established to promote the welfare of people who are affected by any form of the neurological movement disorder known as dystonia. The Society aims to do this by promoting awareness of the disorder, by supporting research and by undertaking welfare initiatives. It does this on a national level and through its network of local support groups.

Weblink: http://www.dystonia.org.uk/

Tel: 0845 458 6211

Category: Third/voluntary Sector

Last Updated: 26th of June 2026

Services Provided

Dystonia Society helpline

The telephone Helpline is available Monday to Friday from 10:00 to 16:00 to deal with questions about dystonia from both members and non-members, and from healthcare professionals. Helpline staff are not medically qualified and that the Helpline cannot offer advice about an individual's treatment or provide any type of diagnosis. The service can however provide support and information on many aspects of dystonia and its management
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Dystonia Society Forum

An on-line forum where people can discuss any aspect of dystonia.
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