Wales Council of the Blind

Bardet-Biedl Syndrome monthly chat

Description: Monthly chat for adults with Bardet-Biedl Syndrome. Events are arranged on a month by month basis, generally at the end of the month. If you would like to join in, please email rebecca.perfect@bbsuk.org.uk.

Weblink: https://bbsuk.org.uk

Type: Support Group

Coverage: All Wales

Provider: Bardet-Biedl Syndrome UK

Keywords: Bardet-Biedl Syndrome, support group

Last Updated: 3rd of February 2025

Events associated with this service:

16th of July 2026

Monthly Chat for adults with Bardet-Biedl Syndrome (online)

Bardet-Biedl Syndrome UK leads virtual monthly chats for adults with Bardet-Biedl Syndrome, a rare, genetic disorder, which affects approximately 1 in 100,000 babies born. Events are arranged on a month by month basis, generally at the end of the month. If you would like to join in, please email admin@bbsuk.org.uk and you will be sent all the details.

Hosted by - Bardet-Biedl Syndrome UK