Description: BBSUK is the only registered charity in the UK supporting people with Laurence-Moon-Bardet-Biedl (LMBB) Syndrome, their families and carers. The aims of the Society are: to preserve and protect the health and promote the welfare of persons suffering from BBS, and to advance the education of the medical and educational professionals and the general public on the subject of BBS.
Weblink: https://bbsuk.org.uk
Tel: 07510 384242
Email: admin@bbsuk.org.uk
Category: Third/voluntary Sector
Last Updated: 23rd of October 2023
Services Provided
BBSUK
can help by putting you in touch with other families who are facing similar problems, by passing on
advice which has helped others in the day to day management of thieir
children, and by sending information which will help professionals in
medical and educational fields to understand more about our special children.
href="/glossary/246/advice">Advice and advocacy service for people with Bardet-Biedl Syndrome.
Monthly
chat for adults with Bardet-Biedl Syndrome. Events are arranged on a month by month basis, generally at the end of the month. If you would like to join in, please email rebecca.perfect@bbsuk.org.uk.
