Description: The society provides a range of information and support to people affected by Behcet's Syndrome. It also promotes and assists with research into the condition, and promotes awareness of the disease.
Weblink: https://behcetsuk.org
Tel: 0845 130 7329
Email: info@behcetsuk.org
Category: Third/voluntary Sector
Services Provided
The Society will provide
grants to help people who are in hardship because of Behçet's disease. To provide a grant, evidence of the amount needed must be provided. Examples of claims which might be funded include prepayment certificate for drugs, help with
travel to hospital, household bills, help towards computer with reading aids/
voice recognition if you are
visually impaired, or aids/other equipment not available on the NHS to help if you are
disabled.
A telephone
helpline for members which is available between 9.00 am and 8.00 pm on weekdays and between 10 am and 6 pm on weekends and bank
holidays (see website for full details). It is run by volunteers so answerphones may be used at certain times. Callers who leave a message are contacted as soon as possible at the Society's expense.
Local
support groups in-person and online. For groups in Wales contact Rachel below for more information.
An online
Support Group for the spouses and partners of people living with the condition. Often, one of the greatest effects of the diagnosis of a long-term chronic illness like Behçet’s is on the spouses or partner, and this group is a chance to share their thoughts and connect with others in similar situations who understand what they’re going through.
The group is open to anyone aged 18 or over living in Wales who is affected by Behçet’s.
Library items from this provider:
