Behcet's UK
Description: The society provides a range of information and support to people affected by Behcet's Syndrome. It also promotes and assists with research into the condition, and promotes awareness of the disease.
Weblink: https://behcetsuk.org
Tel: 0845 130 7329
Email: info@behcetsuk.org
Category: Third/voluntary Sector
Services Provided
Financial aid
The Society will provide grants to help people who are in hardship because of Behçet's disease. To provide a grant, evidence of the amount needed must be provided. Examples of claims which might be funded include prepayment certificate for drugs, help with travel to hospital, household bills, help towards computer with reading aids/voice recognition if you are visually impaired, or aids/other equipment not available on the NHS to help if you are disabled.Behcet's UK Helpline
A telephone helpline for members which is available between 9.00 am and 8.00 pm on weekdays and between 10 am and 6 pm on weekends and bank holidays (see website for full details). It is run by volunteers so answerphones may be used at certain times. Callers who leave a message are contacted as soon as possible at the Society's expense.Behcets Local Support Groups
Local support groups in-person and online. For groups in Wales contact Rachel below for more information.Events associated with this provider:
26th of January 2026
Behçet's UK support group for spouses and partners (online)
Online support group for spouses and partners of people living with Behçet’s. This group provides a safe and supportive space for anyone living in the UK whose spouse or partner has Behçet’s to share their thoughts and connect with others in similar situations who understand what they’re going through. The group is open to spouses and partners (18+) of people living in the UK who have been diagnosed with, or are seeking a diagnosis of, Behçet’s. If you are interested in joining this meeting, please visit Behçet’s Support Group page via the link provided and complete the online registration form by 11:30am on Monday 26th January 2026.Hosted by - Behcet's UK