Wales Council of the Blind

Behcet's UK

Description: The society provides a range of information and support to people affected by Behcet's Syndrome. It also promotes and assists with research into the condition, and promotes awareness of the disease.

Weblink: https://behcetsuk.org

Tel: 0845 130 7329

Email: info@behcetsuk.org

Category: Third/voluntary Sector


Services Provided

Financial aid

The Society will provide grants to help people who are in hardship because of Behçet's disease. To provide a grant, evidence of the amount needed must be provided. Examples of claims which might be funded include prepayment certificate for drugs, help with travel to hospital, household bills, help towards computer with reading aids/voice recognition if you are visually impaired, or aids/other equipment not available on the NHS to help if you are disabled.

Behcet's UK Helpline

A telephone helpline for members which is available between 9.00 am and 8.00 pm on weekdays and between 10 am and 6 pm on weekends and bank holidays (see website for full details). It is run by volunteers so answerphones may be used at certain times. Callers who leave a message are contacted as soon as possible at the Society's expense.

Behcets Local Support Groups

Local support groups in-person and online. For groups in Wales contact Rachel below for more information.

Behçet’s UK Online Support Group for spouses and partners

An online Support Group for the spouses and partners of people living with the condition. Often, one of the greatest effects of the diagnosis of a long-term chronic illness like Behçet’s is on the spouses or partner, and this group is a chance to share their thoughts and connect with others in similar situations who understand what they’re going through.

Events associated with this provider:

28th of February 2026

Behçet’s UK - Wales Support Group Meetings (online)

The group is open to anyone aged 18 or over living in Wales who is affected by Behçet’s. The next meeting will be a general support group meeting, where everyone can chat and ask questions. The host Rachael will guide the discussion based on your input. If you are interested in joining this meeting, please visit the Behçet’s website via the link provided and complete the online registration form.

Hosted by - Behcet's UK


Library items from this provider: