Nystagmus Network
Description: UK charity providing support and information to people with Nystagmus and to professionals. Also funds research. Membership needed for some services.
Weblink: https://nystagmusnetwork.org
Tel: 01427 718093
Email: info@nystagmusnet.org
Category: Third/voluntary Sector
Last Updated: 1st of September 2025
Services Provided
Nystagmus Network helpline
The helpline can answer questions on what it's like to have nystagmus, on treatment and research, on DLA, on education and employment, on driving and discrimination, in fact anything you can think of related to nystagmus, whether congenital (early onset) or acquired (late onset). Or you can just phone for a chat with someone else who has nystagmus.Nystagmus Network
The Nystagmus Network website has a range of information about the condition. However, membership gives additional benefits such as access to experts, advice, support and discounts on NN publications.Nystagmus Network Virtual adults' get together - congenital nystagmus
The Nystagmus Network virtual adult get together group for adults living with congenital nystagmus to connect with other people with nystagmus and make new friends.Acquired nystagmus get together
The Nystagmus Network virtual get together group for adults living with acquired nystagmus to connect with other people with nystagmus and make new friends.Virtual parents’ get together
The Nystagmus Network hosts virtual parent get togethers on Zoom. If you’re the parent, carer or other family member of a child or young person with nystagmus and would like to join in, meet others and make new friends, please email us.Nystagmus Network virtual support network
Virtual monthly support groups for parents of children with nystagmus, and for adults living with acquired or congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.Events associated with this provider:
29th of October 2025
Nystagmus Network virtual support network - Acquired and Oscillopsia Nystagmus (online)
Usually held on the last Wednesday of the month. Virtual monthly support group for adults living with acquired. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
30th of October 2025
Nystagmus Network virtual support network - Congenital Nystagmus (online)
Usually held on the last Thursday of the month. Support group for those living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
26th of November 2025
Nystagmus Network virtual support network - Acquired and Oscillopsia Nystagmus (online)
Usually held on the last Wednesday of the month. Virtual monthly support group for adults living with acquired. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
27th of November 2025
Nystagmus Network virtual support network - Congenital Nystagmus (online)
Usually held on the last Thursday of the month. Support group for those living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
25th of December 2025
Nystagmus Network virtual support network - Congenital Nystagmus (online)
Usually held on the last Thursday of the month. Support group for those living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
31st of December 2025
Nystagmus Network virtual support network - Acquired and Oscillopsia Nystagmus (online)
Usually held on the last Wednesday of the month. Virtual monthly support group for adults living with acquired. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
28th of January 2026
Nystagmus Network virtual support network - Acquired and Oscillopsia Nystagmus (online)
Usually held on the last Wednesday of the month. Virtual monthly support group for adults living with acquired. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
29th of January 2026
Nystagmus Network virtual support network - Congenital Nystagmus (online)
Usually held on the last Thursday of the month. Support group for those living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
25th of February 2026
Nystagmus Network virtual support network - Acquired and Oscillopsia Nystagmus (online)
Usually held on the last Wednesday of the month. Virtual monthly support group for adults living with acquired. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
26th of February 2026
Nystagmus Network virtual support network - Congenital Nystagmus (online)
Usually held on the last Thursday of the month. Support group for those living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
25th of March 2026
Nystagmus Network virtual support network - Acquired and Oscillopsia Nystagmus (online)
Usually held on the last Wednesday of the month. Virtual monthly support group for adults living with acquired. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
26th of March 2026
Nystagmus Network virtual support network - Congenital Nystagmus (online)
Usually held on the last Thursday of the month. Support group for those living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
29th of April 2026
Nystagmus Network virtual support network - Acquired and Oscillopsia Nystagmus (online)
Usually held on the last Wednesday of the month. Virtual monthly support group for adults living with acquired. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
30th of April 2026
Nystagmus Network virtual support network - Congenital Nystagmus (online)
Usually held on the last Thursday of the month. Support group for those living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
27th of May 2026
Nystagmus Network virtual support network - Acquired and Oscillopsia Nystagmus (online)
Usually held on the last Wednesday of the month. Virtual monthly support group for adults living with acquired. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network
28th of May 2026
Nystagmus Network virtual support network - Congenital Nystagmus (online)
Usually held on the last Thursday of the month. Support group for those living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.You can find out more via the link provided, or email info@nystagmusnet.org.Hosted by - Nystagmus Network