Stargardt's Connected
Description: Stargardt’s Connected exists to raise awareness, give support and to do what we can to progress towards a cure. Stargardt's Connected provide information to families affected by Stargardt’s, signpost them to available support, inform of latest research and also to promote a Stargardt's community which aims to assist in driving essential research forward.
Weblink: https://stargardtsconnected.org.uk/about/
Email: info@stargardtsconnected.org.uk
Category: Third/voluntary Sector
Events associated with this provider:
4th of October 2025
Stargardt's Connected parent's session - 'Travel tips for people with Stargardt's' (online)
You will hear VI travel tips including travelling internationally, navigating new places, and there will be a chance to raise your travel-related questions. The second part will be breakout sessions where you’ll have the opportunity to speak to others in smaller groups and share your experiences. For more information and to book a place, click the link providedHosted by - Stargardt's Connected