Wales Council of the Blind

Stargardt's Connected

Description: Stargardt’s Connected exists to raise awareness, give support and to do what we can to progress towards a cure. Stargardt's Connected provide information to families affected by Stargardt’s, signpost them to available support, inform of latest research and also to promote a Stargardt's community which aims to assist in driving essential research forward.

Weblink: https://stargardtsconnected.org.uk/about/

Email: info@stargardtsconnected.org.uk

Category: Third/voluntary Sector


Services Provided


Events associated with this provider:

25th of February 2026

Stargardt's Connected Young People's meeting (online)

The ession is all about getting active with Stargardt’s, from the physical and emotional benefits, to overcoming barriers and even using tech to stay fit. You can book a place via the link provided.

Hosted by - Stargardt's Connected

28th of February 2026

Stargardt's Connected Community World Rare Disease Day (online)

A Community Zoom session for parents for World Rare Disease Day. Dr Thales Guimaraes will give an update on the latest Stargardt’s Research with opportunities for Q and A afterwards. To book your place, visit the link provided.

Hosted by - Stargardt's Connected