Retina UK
Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Weblink: https://retinauk.org.uk/
Tel: 01280 821334
Email: services@retinauk.org.uk
Category: Third/voluntary Sector
Services Provided
UK Care Pathway for RP
An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.Retina UK Helpline
RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.Retina UK Talk and Support
For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.Retina UK Peer Support Groups Young Adults
A peer support group that provides a welcoming, safe and friendly opportunity for young adults aged 18 - 30 living with inherited sight loss to meet up to share experiences, tips and information.Retina UK Talking Home and Garden peer support group
An interest-focused group is a safe, friendly & welcoming place which will give you the opportunity to share your stories, tips, hints and advice around all things home & garden from DIY & decorating to planting flowers & mowing the lawn. It will meet online, via Zoom, bi-monthly.Retina UK 'Talking' Creative Arts Peer Support Group
This interest-focused group will give you the opportunity to share your stories, tips, hints and advice around all things creative from painting to pottery, sketching to sculpting and every creative talent in between. It will meet online, via Zoom.Retina UK 'Talking' Tech Peer Support Group
A peer support group where you can share your experiences, tips and hints around all things Tech. The meetings take place bi-monthly via Zoom.Genetic Counselling
The aim of genetic counselling is to help individuals and families to understand the condition, make choices, access any appropriate screening or medical treatment, communicate with relatives and find suitable support. Genetic counsellors will often draw a family history, explain relevant inheritance patterns and discuss risks to children. They are also experts at explaining genetic test results.Retina UK Peer Support Group - Talking Books
A peer support group for audio book lovers.Events associated with this provider:
23rd of February 2026
Retina UK Interest Focused Peer Support Group: 'Talking' Creative Arts (online)
This interest-focused group will give you the opportunity to share your stories, tips, hints and advice around all things creative from painting to pottery, sketching to sculpting and every creative talent in between. For more information and to book a place, click the link provided.Hosted by - Retina UK
25th of February 2026
Young Adults Peer Support Group (online)
This Peer Support Group provides a welcoming, safe and friendly opportunity for young adults aged 18 - 30 living with inherited sight loss to meet up to share experiences, tips and information.Hosted by - Retina UK
26th of February 2026
Retina UK Men's peer support group (online)
The meeting is a safe, friendly & welcoming place which will give guys with sight loss the opportunity to all sit around a virtual table and discuss what’s on their minds. For more information and to book a place, click the link provided.Hosted by - Retina UK
5th of March 2026
Retina UK Peer Support Group - 'Talking Books'
Peer support group for audio book lovers. For more information and to register, click the link provided.Hosted by - Retina UK
31st of March 2026
Retina UK Webinar - National Peer Support Group meeting (online)
The a guest speaker will be Stuart Hann, The Blind Chocolatier. For more information and to book a place, click the link provided.Hosted by - Retina UK